Friday, December 14, 2018

Just plain weird.

My journey is unique. It's complex. It's hopeful, but it's just plain weird! I think I have little to complain about because I had a very kind & humble, skilled doctor looking over me. She wasn't afraid to ask for help when she knew she needed it for my best outcome. I believe that someone was watching over me. The fact that other skilled surgeons were available & came to her aid (or my aid) at just the right time simply blows my mind! Because I believe that all good things come from above, I thank God for aligning my stars.

The surgery began on time. Going in, everything looked good. I'd had bleeding. My sonogram showed a thickening of the lining of the uterus. My D&C was clean. My pre op tests were good (labs & EKG). My labs the morning of the surgery were good. I had my usual amount of anxiety, but I just figured that was normal. My biggest concern being, "What if she (my doctor) finds cancer? I could never have imagined what she found, & I'm not sure that sharing it is or isn't TMI? I don't even know how to word that question clearly. So... here goes. I'm going to be straight with you. If you want to judge me for TMI, I understand.

I am still traumatized by what the doctor found. It was the severest form of endometriosis that exists. My organs had all meshed together & fallen into my pelvis. I had a frozen pelvis. My organs could not be differentiated one from the other. The doctor is trained on a a Robot. If you google Robotic, you will see a machine that looks like it just walked out of a Star Wars movie.

As the doctor operated, she was not anywhere near my body. Rather, she was sitting at a screen with a joy stick commanding the little tools to meticulously cut the endometriosis out of me. By the grace of God, the Oncology OB GYN (also trained on a Robot) was nearby & able to assist. The 2 doctors worked side by side to cut pieces of frozen endometriosis from my pelvic area. As time went on, the General Surgeon was called in. Another surprise! My rectum had grown into my uterus.

The General Surgeon said it was too complicated for her so a Colorectal Doctor who also was trained on a Robot came to the good doctor's aid on my behalf. He dissected my colon, removed it from the uterus, & sewed it back together. "What the Heck?" I'm like, "Did this really just happen?" I also had a colonoscopy during all of this. Btw... my bladder is good. That got a look too.

I think I must have had 4 or so surgeries in one unexpected sitting. Waking up was hard for me. It took about 4 hours. Once I was placed in a room, I became so nauseated I couldn't move for the next 4 hours. In all I have been through, I have never known suffering like that. I hope I never have to face 1 minute like those 4 hours ever again!

I am now home. My prayer is that I won't get an infection. My pain level is just discomfort, not really even pain. Pottying is a little unnerving, but I believe that will resolve itself in time. If I have to have surgery again (which I may), I will be afraid. Severe Endometriosis has 7 tell tale symptoms. In all of my 56 years, I have never experienced 1 symptom. Apparently, my case was silent. As I recover, I expect some level of pain. I have had little to none. Just discomfort & trouble getting up out of my chair. Hopefully, my pathology will come back cancer free. I must give a shout out to Doctor Cameron, the other doctors who so kindly stepped in, all of my praying, caring friends, & the Good Lord Above for aligning my stars.

2 comments:

  1. What a whirlwind! So grateful the doctors were so diligent and careful and alert, Susie! Thank you for sharing your story, and for being so brave to keep trusting that Jesus is abiding with you through all of this! Praying right now for you! Love you!

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  2. Thank you so much, Katie! Miss you!

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